Friday, November 16, 2012

Fighting Cancer Fatigue


Thu Nov 15, 2012 6:59pm EST
(Reuters) – People who have been treated for cancer often have lingering fatigue, but regular walking or cycling might help boost their energy, according to a UK study that looked at more than two thousand people.
The long-lasting tiredness of cancer patients has been blamed both on the cancer itself, including cancer-related pain, and on the effects of treatments such as chemotherapy. Prior studies point to talk therapy, nutrition counseling and acupuncture as possible remedies.
But light-to-moderate exercise has the advantage of being something people can do on their own time, for little or no cost, said the researchers, whose findings appeared in The Cochrane Library.
“We’re not expecting people to go out and be running a mile the next day,” said Fiona Cramp, who worked on the analysis at the University of the West of England in Bristol.
“Some people will be well enough that they’re able to go for a jog or go for a bike ride, and if they can, that’s great. But we would encourage people to start with a low level.”
Cramp and her colleague James Byron-Daniel pooled findings from 38 studies that directly compared more than 2,600 people with cancer-related fatigue who did or didn’t go through an exercise program.
The majority of that research looked at women with breast cancer and the type of exercise program varied, from walking or biking to weight training or yoga. More than half of the studies included multiple exercises or allowed participants to choose their own type of physical activity.
The amount of prescribed exercise ranged from two times per week to daily workouts, lasting anywhere from ten minutes to two hours, depending on the study.
When they combined the results, the researchers found physical activity both during and after cancer treatment was tied to improved energy. In particular, aerobic exercise such as walking and cycling tended to reduce fatigue more than resistance training.
“What we do know is there will be an appreciable difference; the average patient will get a benefit from physical activity,” Cramp said, though the actual benefit will vary.
For example, there were exercise-related benefits for people with breast cancer and prostate cancer, although not for those with leukemia and lymphoma.
“Some of the hematologic patients may not have the reserves to always tolerate the aerobic exercise,” said Carol Enderlin, who has studied fatigue and cancer at the University of Arkansas for Medical Sciences in Little Rock.
“They do not always have the oxygen carrying capacity, for instance,” because the disease and treatment affect blood cell counts. For those people, non-aerobic exercise or exercise at a lower does may be a better option, added Enderlin, who was not part of the research team.

Wednesday, November 7, 2012

Wise words by Mother Teresa


Wise words by Mother Teresa

We need to find God, and he cannot be found in noise and restlessness. God is the friend of silence. See how nature – trees, flowers, grass- grows in silence; see the stars, the moon and the sun, how they move in silence… We need silence to be able to touch souls.
~Mother Teresa

Sunday, November 4, 2012

Over & Over Again

It's not what we do once in a while that shapes our lives, but what we do consistently- To direct our lives we must take control of our consistent actions.

It's interesting that we can open up our lives and reach our objectives by having the discipline to do things consistently!

Saturday, October 13, 2012

Indian Summer

An amazingly stunning day in NYC, I love the Indian Summer type weather. What a difference this week is from the same a year earlier! I'm not too certain what the weather was then, but I know this day I am alone, but don't feel alone.... it's good to be alone sometimes.

This week last year I was just a few days away from being diagnosed with Pancreatic Cancer, life was confusing, I new I was sick but couldn't get my Doctor to understand that........ This forced me to break off a 20+ year relationship with a man I knew somehow had my best interests at heart yet wasn't opening up his senses enough to see, to listen, to feel his patients deteriorating situation. After all I was always "The Strong One" right? ...right??

This year I am The Strong One in such a different way, this year I am strong for myself first. Being strong for myself first has made me substantially stronger for others. I am 1 month from my first "Cancer Free" tests.

Today I am alone, I am happy and I am enjoying Indian Summer.

Friday, May 18, 2012

Holy Moly - getting out of the Hospital

Sorry for the poor updating on my part! In fairness to my self..."Holy Shit" I've been knocked on my ass- Wow, I like to think of myself as a tough guy but this totally through me of my horse.

I was in the Hospital (Sloan Memorial Hospital York/67th) for about 10 days which was longer than expected. So I am "Out" of the Hospital for 2 1/2 week.

The surgery was major league if your not familiar - Ill describe it as "They split my torso from chest down took out a lot of stuff, re positioned what remained re stitched together the organs in a different pattern and BAM I was done.

There were some complications resulting in large loss of blood and also several Heart Arrhythmia episodes, so that's why I got held up for all the extra days.

Anyway everyone really everyone at the Hospital was great, friendly, caring, efficient. I was pretty uncomfortable the whole time and even I knew I was on heavy doses of drugs for pain etc.

So without a drawn out bunch of stories at 10am on a Sunday they poured me into a cab on York Avenue and off I went to my sanctuary of an apartment on York/92nd.

Getting home..........Getting Home....... don't ever underestimate what it means to get home! I felt so much better just getting into my own living room! I Cried like a baby (but I am known to do that) ...........probably the damn drugs?

I'm Home! Thank God- And thanks to all those who keep me in their thoughts!

Tuesday, May 1, 2012

Today I Beat Cancer

Today I am Cancer Free ! Thanks to everyone for love and support! I will send details shorttly.

I love you!

Tuesday, April 24, 2012

Pearce Love Strength

Tonight

Il lfill in an update a soon as possible

I made it thru surgery, it's been hard as heck - I've been wiped out it all here's a pick from tonight '

Love & Prayers

Monday, April 16, 2012

We're on!

Waiting in pre-op, about to head to O.R. - Some good sedation starting to kick in.

I have decided to envision this as going for Liposuction - I am visualizing myself at 6' and 205lbs! SEXY!!!

And in my new post cancer life I will maintain that weight! Ummmmm SEXY!!


I'm leaving now- I love u all!!

Wednesday, April 11, 2012

From Patrick Swayze to Steve Jobs to Peter Griffin

Now I understand what happened during the discovery of the cancer in my liver last week. It took a long time to identify the pathology. And the Dr's had trouble matching the newly found cells with the original tumor in my Pancreas.

Going back to my initial diagnosis, you may know it took an exceptionally long amount of time to identify the cells taken from the tumor out on Long Island. Indeed I ended up having 3 Endoscopies (sp?) (Needle Biopsy's)  where they sampled the Tumor before they could identify the type of cells. (The Patrick Swayze Type- aka Nasty)

So when they found the cells in my liver and sampled them (Bigger Sample) they identified them as Neuro Endocrine a different type of cancer cell (The Steve Jobs Type-somewhat Less Nasty)

Although it is possible to have the two types existing at the same time it is highly unlikely.

Now, going back, they believe that the cells in the Pancreas are also the Neuro Endocrine type.

This is really good news, and provides a little more hope! :)

So theres the Steve Jobs Type, The Patrick Swayze type.....and my type The Peter Griffin Type.

purplestride.org/newyorkcity April 21, 2012 10a Walk fundraiser for Pancreatic Cancer Riverside Park NYC

Sunday, April 8, 2012

Ready for Surgery 'One mo time

I developed a weird ailment where I would feel light headed and as if I was about to faint, it ended up pretty bad and I was admitted to Memorial Hospital- While in there they did all the tests for the Whipple operation, along with brain scans etc. I have to say it was a very good experience, the nurses and the staff there were remarkable, the whole place was drama free, and the food wasn't too bad either!

So i got out after 4 days, with some changes to my medicines, and I feel much better.

Now on Easter Sunday I am entering the week before my surgery, I am tentatively scheduled for April the 16th.

This week I have many Dr Appointments in order to getting clearance from the Cardiologist, Neurologist, Oncologist and Surgeon.

I also will have Acupuncture, Meditation, and Massage treatments. And most importantly I will try to relax and be strong and do somethings thst make me happy, like today being in Provincetown, and then maybe getting to the park etc.

I will be ready come next Monday! :)

Love to everyone!!

Thursday, April 5, 2012

Hold The Chemo

I was not excited to be restarting the Chemo, so when i received a call 2 days before my start date telling me to hold off on starting with the oral Chemo, because it was taking an unusual amount of time to get the pathology reports from the Liver Cancer back..... I wasn't too disappointed.

Then on the day I was supposed to start I got another call from the Oncologists office telling me not to take the drugs and please come see Her on the next day.

I was surprised when i met with the Dr and she informed me that she was optimistic because the type of cells they found in the liver were a non aggressive type and they feel I can be a candidate for the operation again.! !

Wow- I was then scheduled to meet up again with the surgeon on Tuesday.

I was excited to again feel I had a chance to get rid of the tumor, and a bit scared again at the thought of that big operation.

Post Surgery Plan

So I had to get used to the idea that Surgery was not an option.

Peter Griffin- I call my Tumor Peter Griffin based upon the Family Guy character. I named him almost immediately upon his discovery. My association was that he (the Tumor) was a dopey middle aged guy of very limited intelligence taking up space in my life.

Now my chance to get him outta my belly was gone? Shit!

But the battle goes on! The next meetings were with the encologist, who laid out a Chemotherapy plan that would start right away. She explained in her compassionate way about the cells that were found in the liver and that they were analyzing them.

5 days till chemo-starts up again......oh Joy! How the hell can Peter Griffin be playing such a strong hand??

Well 5 days of trying to feel strong again!!

3/16 Whipple Surgery Day Detail

March 16th was my surgery day! Now that things have calmed down, I can tell the story with some more detail. I was kind of excited and kind of scared shitless :) They would be removing the Tumor, and some surrounding tissue and organs.

My sister Janet had come in to town to give me support from PA, her plan was to stay while I was in the Hospital 7-10 Days and then stay in the city till the end of the month to nurse me through rehab.

The side effects of the Chemotherapy were finally starting to wear away, but I was still quite exhausted and drained, I hated the 9 weeks of Chemo Yikes! But I made it through.

The operation I was having is called the Whipple, the surgeons office prepared me for the good the bad and the ugly of it all, including the wake up in the dark ICU with many tubes in many places etc.

I went in to Memorial Hospital bright and early that morning armed with my sedatives and the support of Peter, Wayne & Janet.......What more could a guy ask for?

I had a sort of horrible experience in the get-ready room with a young nurse who had some "trouble" accessing the port in my chest. Thankfully another Nurse came by and ended the carnage.

But thanks to lots of sedatives while I was being made ready I was asleep BEFORE i saw the inside of the operating room, which makes me happy, I don't really enjoy being awake in those super bright, super chilled rooms while the OR staff does their set up.

So off I went to the 4-5 hour operation!

And then ........I Woke up.........

Surprised I woke up in a very cheery environment, not at all the high-tech dungeon i expected! I had trouble shaking off all the drugs but the room gradually came into focus, I was sitting quite upright in a rolling bed, a nurse was at a desk to my left and a few empty beds were on either side of me. The room was bright and i felt surprisingly well! No breathing tube! And it sure didn't seem like there were other "tubes" in my nether regions...... I could hear the nurse on the phone telling someone that I was awake. I asked her what was up and she said "Your surgeon is on his way to speak with you"

It wasn't long, or didn't seem long before I saw the Surgeon was on his way down the hall followed by Wayne, Peter & Janet. I was happy to see friendly faces although I'm not quite sure the look on their face was happy.

Bottom line was that prior to the big surgery they do laposcopic surgery, while exploring the Dr discovered previously unseen Cancer cells were in my liver. With the cancer spreading to the Liver a decision was made that the Whipple operation was no longer viable.

So now I was feeling better than I thought physically but not so great emotionally. My Abdomen started to hurt from the incisions.........

I was still remarkably hanging in there, I guess I had become used to the ups & downs and twists & turns of this cancer battle, I knew there were more battles to come and I would get my wins :)

Thursday, March 22, 2012

First Day of Spring

What an amazing day, the weather was great and it stayed light out for so long. This was taken on the roof of my building, about 35 stories up!

Friday, March 16, 2012

Road block

Hi Guys its me!

The good news is I did not have to proceed with that mega-operation today :)

The bad news is that upon the initial incisions we found Cancer has spread (or had been existing already) in the liver. We cannot remove the tumor now, i'm no longer a candidate, removing the tumor would apparently make it not possible to treat the liver issue with Chemotherapy for an extended period of time.

So I am off to the Oncologist on Tuesday- And we will attack this mother head on!!

Thanks for your love and support,  it's what keeps me strong-

Great Weekend!
All set for surgery this morning @ 11:00am! Thanks to everybody for your prayers and good wishes. I am a lucky man :)) I'll keep you posted on my healing journey.


i will give this blog address to someone, peter or janet etc. to update. i will be out of it for at least a day or two- so hopefully they can keep u updated.



Thursday, March 15, 2012

Surgery Date

Ok Surgery set for tomorrow 3/16 Friday @ 11am- They may update the time- but thats what we know so far! Yikes! :)

Friday, March 9, 2012

Help is on the way (beauty emergency)

So my big operation is scheduled for next Friday! The Dr's are attempting to repair the damage done to my looks !!

Hehehe. Here's today's version of me- big love to all of you, make it a great day!!